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Aidan’s Rides in 2021 – Riding for a Good Cause

Here at 2Wheel, we know the power of rally riding and supporting a community.  We’d like to encourage all of our supporters to join us in riding this year to honor Aidan Jack Seeger – a young boy whose life was tragically taken by a genetic disease called Adrenoleukodystrophy, and whose legacy lives on through the ALD Alliance Foundation.

Testing a newborn baby for genetic mutations is the most effective way to diagnose a child with ALD, and to increase the chances of that child living a healthy, long life.  Currently, only a handful of states in the U.S. have ALD testing as part of a newborn panel.

Aidan comes from a long line of riders, and his family combines their passion for motorcycles & the rare disease community to raise funds in his honor, with several rides a year.

We’re calling all riders and motorcycle enthusiasts to consider participating in Aidan’s Rides, as all proceeds go to support a non-profit organization called ALD Alliance.  This foundation is a “tribute to our hero Aidan who suffered enormously and showed us the meaning of kindness, hope and most of all love. Our hope is to help save future boys and their families this unimaginable suffering.” – Elisa Seeger, Aidan’s mom

Major initiatives of the ALD Alliance include:

  • To advocate for ALD newborn screening in every state and change legislation through outreach
  • To raise awareness of ALD and increasing the probability of early detection and treatment
  • To support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of the disease

Upcoming Ride Details:

9th Annual Aidan’s Ride through the West Virginia Countryside 2021

When? Saturday, October 9, 2021.  Breakfast (included in ticket price) is from 9AM-11AM.  Ride leaves at 11AM from The Frosted Mug and returns for an after party at 4PM.  

Where? West Virginia. The Frosted Mug, 1103 Greenbag Rd, Morgantown, West Virginia 26508.

How? Registration is from 9:00 a.m. to 11:00 a.m.  The signup cost is $25 per rider or $40 per couple.  You can also make a donation, or volunteer in lieu of riding.

More Details: Music by Dunkard & Wheeling, more prizes and fun! Ticket also includes the chance to win grand prize!

Here’s more information on the purpose of the Foundation, along with Aidan’s story:

ALD Alliance (formerly known as the Aidan Jack Seeger Foundation) was established to address the need for information and newborn screening with respect to Adrenoleukodystrophy. In addition, we strive to support and encourage those afflicted and their families as they struggle to endure, adjust and cope with the demands of the disease.. To gather and provide current, functional information and provide financial support to families of children with ALD. To fund research efforts that will identify new treatments, therapies and ultimately, a cure for ALD.. Aidan and our family have been blessed with support from all over the world. Aidan’s Facebook page quickly reached over 20,000 members who went on this journey with us. The letters, cards, gifts made our days brighter and made us feel that although the majority of these people never knew us or our son they were praying for his recovery. The family and friends who held fundraisers allowing us to spend every precious moment with our son are priceless. 

To learn more about Adrenoleukodytrophy, the ALD Alliance, and Aidan’s story, visit the following websites:

ALD Newborn Screening Information

ALD Alliance Foundation Website

Register for Aidan’s Ride 2021

To help raise funds and spread awareness of ALD newborn screening, register for Aidan’s Ride 2021 in New Jersey or Western Virginia today. You can also donate directly to the cause through the website.  Thank you for your consideration in supporting such a great cause, and helping to keep Aidan’s legacy alive.

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